Over the years of looking after my Autistic son I have become very dominate you might say because I am trying to get the best for my son. I find if you are to easy to get on with people walk all over you and I put up with enough of that in the past.
David he cannot talk for him self and he relies on Mum to get the help which he needs for him to live a happy fulfilled life. The on way to get things for him now a days is through the National Disability Scheme.
The preparation before you have your case worker come is important, you need to lay down all the needs of you child or adult to enable the right funding for them. I being David’s mum and nominee have to plan for David for that year.
I have to say for the last two years David’s funding has been good, its the putting it to work is the hardest part. the planning of his programs he has a the centre don’t always work. They seem to do what they want. Client cant talk we’ll do things our way. That is not fair on David.
One of the meetings we had had to put together activities David likes. That is all well and good you draw up the plan. Butt do the staff see this plan no its tucked away on file in a filing cabinet for the moths to view people wonder why I get angry. David needs to be stimulated so he enjoys his day of the week.
But its like same thing day in day out they have no imagination of what to do to give a entertaining day.
I sometime feel I’m hitting my head against a brick wall. The frustration and anger just builds in me, its my son I want for him to enjoy the life he has am I so wrong to want this for him. I wont give up I’ll fight for my son like so many others out the fight to give there disability members of there family the quality of life they deserve.